Wednesday, June 20, 2018

The monster rears its ugly head

Yesterday, I had my regular MRI. Today, the doctor's office made an unusual & unexpected call to inform me that there is a recurrence!



Understandably, both my wife and I are devastated by this bit of bad news even though as I mention in the Ignite Boulder talk, a recurrence is highly expected for a Glioblastoma patient. As of now, we know that the new lesion is about 2.5 cm wide/long/deep and is in the left parietal lobe. The original tumor was in the right temporal lobe.

We will know more about what the next steps are and what we can expect in the upcoming days/weeks/months when we meet with our Oncologist next Thursday.

For now, we will keep our hopes up and try to be positive.

And I am Stayin' Alive! 

6 comments:

  1. Let me know how I can support you and your family during this time. You inspire me

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  2. I love you, too. Yes, please let me and us know how we can best support you and your family.

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  3. Please keep us posted. I am crossing my fingers and toes.

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  4. My husband just had a recurrence also after 3 years. They gave him cyber knife radiation and he continues with the Optune and Avastin. We also started a Keto diet. Last mri showed new tumor has not progressed. Keep fighting, you are amazing.

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The story so far

It has been a month since I decided to start a blog to journal my journey with Glioblastoma Multiforme after bei...